Wow! What a week. We got home yesterday afternoon and as soon as we walked through the door I just started bawling and couldn't stop! It seems the stress of the whole week all came tumbling out at once. The upside is I think I got it all out and this morning I feel great! 
I was happy he had this huge appetite because I knew he wouldn't be eating for a couple of days...that kid was a bottomless pit!

Poor G. He was EXHAUSTED from all the walking. It wasn't a ton of walking, but he is so breathless after just a block. I ended up carrying him towards the end. I just kept hoping this surgery would help him and that his life would change for ever!
Back at the hotel. Brent and G snuggling and watching T.V.....a favorite pass time of theirs. We sure lived every moment to the fullest that night. Funny how something like this just puts things into perspective and you become your best self. I wish I could be that kind of parent all the time....I think we all know that is IMPOSSIBLE! :) 
Gavin had such traumatic experience when they were trying to give him the anesthesia before his MRI two weeks ago. He wouldn't put the mask on and they ended up having to hold him down and hold the mask over his nose. It only took a couple of seconds, but they were a very scary couple of seconds that he did not forget. I was really worried about him having another bad experience this time around, but Liz had a great idea to wrap a present and tell him he could open it when he woke up. He would not let go of it the night before or the morning of. Great idea Liz!
The hospital also had a solution for this. They gave him this oral medication to relax him before they took him back to be put under. It worked REALLY fast and we had to lay him down in a wagon so he wouldn't fall over. I tried to read him a Winnie the Pooh book and knew he was going to do just fine when he started trying to "pluck" the cabbages out of Rabbits garden. Brent and I could not stop laughing!
The surgery went well and only took about 2 hours. Our Dr. came out to talk to us when it was done. He said that he has done a lot of these decompression surgeries and Gavin was "about as tight as they come" meaning things were really congested in there. He said G should see some real improvements in the next couple of weeks! Hooray! He said they would be moving him to recovery and we could go see him in about 1/2 hour when they had the breathing tube out and he was waking up and breathing on his own. Well....2 HOURS later they had still not called us back and we were beginning to loose it. Someone finally told us they were having trouble waking him up, but we could go back and see him one at a time. That was the hardest thing ever. He was moaning and his breathing sounded really raspy and slow. We tried everything to wake him up, but he was OUT! They said that because of his sleep apnea, he went into a deeper state of sleep and he was really sensitive to the anesthesia so that was also causing trouble....I don't know. Anyway, they couldn't keep his temperature or his oxygen levels up. After 5 hours in recovery the decision was finally made to send him to the NICU until he completely stabilized.
Here is G in the NICU. He finally woke up completely at about 8:00 that night--8 hours after coming out of surgery! Not a fun 8 hours for a parent!
He did really well after he finally woke up. By morning he was ready to be moved to a regular room and ready to open his present! He became known as "the kid with the car collection." Every nurse that came in had already heard about him and knew they would get the run down on all his cars! This hospital stay was more like Christmas than brain surgery! Here he is showing uncle "Joshy Boy" his cool new cars and then a picture with all his loot from all his visitors. Thank you EVERYONE for making things so fun for him!
So, this venture is officially over! He is doing great and even trying to hop on one leg---which we stopped quickly and he really paid a price for....probably won't be trying that again soon! He can't go to school for another week and is not too happy about that, but I think he is going to feel better and better everyday. Thank you all for all the prayers and well wishes.
6 comments:
What a relief to have him home with everything going so well! I'm also glad you had a moment to cry and let go of all the stress... very theraputic.
Holy cow... I bet you were freaking out when he wouldn't wake up! SCARY. U'm so glad the surgery went well!
We are so happy for all of you that all that is behind you now. Hopefully it is all happy, fun and exciting from here.
SOOOO glad all is well!! I feel like I was not a part of this whole thing but it has been a busy week for us too! I am so glad you posted pictures because of not being able to get up there this week. Crazy week for the smiths 2 babies and a brain surgary! So glad he is doing well! He has such a great smile!
Wow, I am so glad he is okay and that all went well, what a good kid he is. I can't imagine how hard that would be, good luck with the recovery.
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